Saturday, June 14, 2008

Happy Father's day Big Daddy!!!!!

Happy Father's Day to my Dad! Will calls my Dad "Big Daddy" Isn't that the cutest? My sister and brother-in-law, Will and I took my dad to the eat BBQ today and had such a great visit. We don't spend near enough time together, but when we do, it's great.
This is a picture that we took 4 years ago on Christmas....
This is Will and Big Daddy last year
AND... to my husband.... Happy Father's Day babe! Will is so lucky to have you as his dad!
This is my favorite picture!

Bryan is giving the Father's Day message at Bay Area Fellowship this weekend and I am so excited! He was going over his message for me last night and...... Oh man is it good! If you are free this weekend, you should go check it out!

Thursday, June 12, 2008

You won't ever visit me again.......

for my professional services. This is what Will's Neurologist told us today. Dr. Bobele told us that as far as he was concerned, he does not think Will has TS at all, and does not see that we need to do any further testing....EVER! WOW! We were NOT expecting to hear that. Our precious boy showed off his cuteness and smarts in front of the Dr. and he fell in love with Will IMMEDIATELY! He even asked if Will could come live with him! HA! As you can imagine, we are just thrilled and are loving all over our son! Thank you for all of your continued prayers! We are so grateful! For now, Will is getting to do what he loves the most..... PLAY UNCLE REX's DRUMS!!!!!

Saturday, May 31, 2008

Check it out!!!!!!!

My husband is back up and running in the Bloggity world. He has a GREAT question for you all! Please visit his blog and comment!

YAY for Bryan!

Tuesday, May 27, 2008


To all who are praying for our sweet Will,

First of all, we would like to thank each and every one of you for your thoughts and prayers. My heart is warm just knowing there were people I didn't even know praying for our little guy. It is such a blessing to have family and friends that shower us in prayer! The Lord truly hears them. We are blessed beyond belief with such a beautiful child.
This has been a LONG 8 weeks of testing and waiting. I am so glad to be over with it. For those of you who have not gotten an update, here is our latest news:
Cat Scan was all clear
Kidneys were all clear
Eyes and retinas were all clear
Genetic blood tests were all normal!!!

Praise God!
Our Neurologist said that 80% of the genitic blood test picks up a positive diagnosis, the other 20% that is negative, the person either does not have it, or the gene was not strong enough to be detected. so we will never have an answer on whether or not he has this disease. We do know that the Shagreen patch on his back is closely associated with the disease, but in some cases is not at all. We are believing that will just has a weird patch of skin on his back and it is NOTHING else.

Anywho, with Tubular Sclerosis, tumors can start to grow later in life and since we don't have a difinitive answer, Will is probably going to have to go through these series of tests once a year, probably forever. Every year that the tests come back clear, it is unlikely that he has TS.
We have a follow up appoiintment with his Neurologist on June 12th. Probably to discuss the plan. As of right now, I believe we are clear to have more children.
We are so happy and elated with this news. Please continue to keep our Will in your prayers as we hope nothing EVER arises from this Shagreen patch. Again, thank you all!!!!!!!!!!

Love- Leslie & Bryan Fiscus

Friday, May 23, 2008

This and That

Been on the go constantly! Here are some random pics:

This was at Monica Carrion's graduation party. He looks like such a big boy here!

This was before Ace Bernal's first b-day.

Oh My, how we grew to LOVE mother's Day out. This was his last day of "school."
P.S.... We still do not have the results of his genetic blood test back. Should be coming in anytime.

My husband gets to preach on Father's Day at church.

Well, thats about it!

Tuesday, May 20, 2008

My baby is all grown up!

My baby brother, Rex, is graduating High School next week and I am the proudest big sis ever! I love him as if he were my own child!!!!!! Here are a list of things that make me so proud it hurts (tear drop):

1. He is a Christian who is not ashamed of his faith and is not afraid to share it with others! Does that mean he is perfect? No, he is human!

2. He is a natural leader! He is one that friends go to for advice. His peers and teachers love him. and always have since he was in Kindergarden. There is something special about that kiddo!

3. The boy has been through a number of VERY traumatic events and seems as if he never went through anything. No victim mentality with Rex!

4. He has had every opportunity to make bad decisions and for whatever reason has not given in to peer pressure! He is stronger than I ever was! I think he is respected by his peers for that!

5. Rex is a phenominal drummer! I am not kidding when I say phenominal! If you don't believe me, he will be playing with the Element Student Church band before the hooks game at Whaterburger Field on June 10th ! GO SEE FOR YOURSELF! He could easily play with any band on the radio.

senior picture! Ahhhh..... so good looking!

Homecoming Court!

Drumming at a show!

us at christmas!

Oh, did I mention that he is a Great Baseball player! Well, he's about the best I've ever seen!

I LOVE YOU REX! You are Amazing and I am so proud to call you my brother!

Wednesday, May 14, 2008

baby Miller update

Hey guys... I just got this email from Baby Miller's mom......

first of all, thanks to everyone who either called, emailed, visited, prayed or thought about us this last week. this has been quite an experience and looks like this is just the beginning of our journey.
just wanted to send a quick update on miller and i will try to give the cliff's notes version.

we were released from the hospital on monday after being in neonatal icu for 6 days. the diagnosis is that he has a congenital heart defect. tetralogy of the fallot --- that is the clinical name of his defect, and it involves 4 abnormalities of the heart. basically to put it in simple terms, he has a hole in his heart between the left and right ventricles (a murmur) and he has an obstruction in his pulmonary artery...both of these must be repaired. so, we are on schedule for open heart surgery in the next 6 months or so. we are on weekly visits to the cardiologist and the pediatrician so he is being closely monitored.

the good news in all this is that his condition can be repaired with surgery. of course, open heart surgery scares us beyond fact i have not even allowed myself to think about the surgery at this point...we are just taking it one day, one hour at a time.

so for the next 6 months our job is to keep him healthy and get him to grow strong for his upcoming surgery. we are trying to train his brothers not to kiss on the face and to scrub down with purell every chance they get. we are basically on self-imposed house arrest as to avoid exposing Miller to any unnecessary germs.

he is beautiful and huge...he weighed in at an amazing 9lbs 5!
please keep us in your prayers as our journey unfolds. it is out of our hands and we trust that the good Lord knows what He is doing.
again, thanks to everyone for all of your thoughts and prayers and please keep praying...we are not out of the woods yet!

heather, matt, tyler, maverick and miller schomburg :)