Wednesday, May 14, 2008

baby Miller update

Hey guys... I just got this email from Baby Miller's mom......

first of all, thanks to everyone who either called, emailed, visited, prayed or thought about us this last week. this has been quite an experience and looks like this is just the beginning of our journey.
just wanted to send a quick update on miller and i will try to give the cliff's notes version.

we were released from the hospital on monday after being in neonatal icu for 6 days. the diagnosis is that he has a congenital heart defect. tetralogy of the fallot --- that is the clinical name of his defect, and it involves 4 abnormalities of the heart. basically to put it in simple terms, he has a hole in his heart between the left and right ventricles (a murmur) and he has an obstruction in his pulmonary artery...both of these must be repaired. so, we are on schedule for open heart surgery in the next 6 months or so. we are on weekly visits to the cardiologist and the pediatrician so he is being closely monitored.

the good news in all this is that his condition can be repaired with surgery. of course, open heart surgery scares us beyond belief...in fact i have not even allowed myself to think about the surgery at this point...we are just taking it one day, one hour at a time.

so for the next 6 months our job is to keep him healthy and get him to grow strong for his upcoming surgery. we are trying to train his brothers not to kiss on the face and to scrub down with purell every chance they get. we are basically on self-imposed house arrest as to avoid exposing Miller to any unnecessary germs.

he is beautiful and huge...he weighed in at an amazing 9lbs 5 oz...wow!
please keep us in your prayers as our journey unfolds. it is out of our hands and we trust that the good Lord knows what He is doing.
again, thanks to everyone for all of your thoughts and prayers and please keep praying...we are not out of the woods yet!

heather, matt, tyler, maverick and miller schomburg :)

1 comment:

Twisting his arm said...

Thanks for keeping us posted. I am still praying for them!